I’M BACK FROM MD ANDERSON

Okay…Well, I have been back for a week. THANK YOU to everyone that has texted, called or emailed me to find out what the doctors said. And I am sorry I haven’t gotten back to you. To be very honest, I have been tired and overwhelmed with no energy to get back to everyone. I guess that’s partly why I started this blog, to keep all of you who care, in the loop. (Well, also because there’s lots of times I can’t sleep or I get super bored in the hospital so it gives me something to do…I said I was being honest.) So here it goes….

It was a whirwind of a trip and all thank you to my GOOD friend Jackie and her husband Cary – some of the most kind, generous and caring people that have entered my life, let alone graced this Earth. I probably will never be able to thank them enough. We got all of my testing and doctor’s appointment all done last Monday. We thought we would need to stay until Wednesday but they wasted no time. My bone marrow biopsy was the last thing I had done Monday afternoon. It was NOT FUN and probably one of the worst I’ve had. I guess Jackie can attest to that because all I keep repeating on the car ride from MD Anderson to the Four Seasons (a 4-mile trip) was, “That was bad. That was bad.” But guess what? I survived.

Jackie was able to arrange for us to fly back home Monday night. So after a crazy cab ride to the airport (he didn’t know where he was going and was a terrible driver) and 3 rounds of throw-up (by me, not Jackie), we were able to board the plane and make the 4-hour flight home. We both slept the whole time.

The only downfall of us making such a short trip is that we weren’t able to explore MD Anderson more. I know we only saw about 1% of the whole place. And here’s the proof:

MD Anderson

 

The only damn picture that I have of the whole place.

I was planning on taking more on Tuesday… It reminded me of a small college campus – multiple buildings and just huge for a hospital. There’s a reason why people go there. It was extremely organized and efficient for such a large place. When I say “We” (I mean Jackie and I) planned on venturing out and doing some exploring on Tuesday….well okay and maybe enjoying the spa at the Four Seasons….but it all worked out just how it was supposed to!

So, you’re on the edge of your seat….”What did the doctor say?”

The doctor said…we’ve done everything right so far. My doctor here said their standard here is 3-4 rounds of consolidation (maintenance chemo.) I have completed 3 rounds. Almost every time I have chemo, I get a brain bleeed. That equals bad. I think if given her choice here, we would have stopped at 3 rounds of chemo. The doctor at MD Anderson highly suggests the 4th round of chemo; despite the risk of another brain bleed. The standard at MD Anderson is 6 rounds of chemo.

There are some tests that should have been done here in Las Vegas that weren’t done. Needless to say, they are being done now. MD Anderson also has the abilities to do extensive further testing because they are a teaching hospital. We should be getting the results of those tests soon. My brain bleeds? They don’t have a good answer – its my anatomy. There is no way to prevent them, except to keep my platelet counts up. We know that chemo is designed to wipe out my blood counts. Its a catch-22. So, that is why I stay in the hospital for at least a month at a time after chemo so they can monitor me: check my platelets daily (at least) and give me platelet transfusions if I need them (which is usually around 2 units of platelets a day.) It is very important that I get A- platelets (my blood type, irradiated and from a single donor.) These are all things that help prevent me from reacting to receiving the platelets. (Its just like getting a reaction when you put anything foreign into your body.) Its also why its so important to become a platelet donor if you can. Its very similar to giving blood. I can sometimes wait for up to 12 hours while they fly my platelets into Las Vegas from Arizona. Thankfully, Cary is A- and willing to donate his platelets to me. They will be a great backup and once again, another reason, for a big thank you.

So, in real terms, what does this mean? I thought I was done with chemo, but I’m not. I am headed into Camp Summerlin this coming Wednesday for another round of chemo. I plan on being there for over a month and I kind of get how the drill goes…it doesn’t mean that I don’t get anxious beforehand. Its not the most fun place to be when I could be home enjoying my daughter’s tennis lessons, my son’s t-ball games or just sitting on the couch and being able to pause and rewind my tv because I have Direct TV. (Let’s face it, sometimes it is just the small things that make us happy.) Its also funny because when I am home during the day, I really don’t watch that much tv.

Supposedly, after this 4th round of chemo, I should be done. Monthly blood tests should show that I am clear of leukemia. If it stays gone for 2 years, then “Peace Out, Leukemia.” If it comes back in that time period, I could be a candidate for a transplant. But we have time before we get to that point. Uncle Braydon better be living a clean lifestyle because the’s my first go-to to find a bone marrow transplant donor.

Well, that’s the basics of our trip and I am grateful that I got to go. We are certainly changing our original course of action and I can only hope that keeps me around a little bit longer!. I give my love and prayers to the Rowe family that live here in Las Vegas and lost their dad to AML just this past week. He left behind a wife and 4 beautiful daughters aged 10-16. I am also sending happy thoughts to Ilene (my walking partner) who had a bone marrow biopsy at MD Anderson today and gets her results tomorrow.

I am sure I will have much more to fill in on…and I’ll have more time on my hands come Wednesday. Stay strong and positive, and pray for these people that need uplighting in their hearts

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MD ANDERSON, HERE I COME!

I have great news. I have had an eventful day and look forward to tomorrow. A very gracious, generous and kind family has insisted that I go to MD Anderson in Houston, TX for a second opinion regarding my AML. For those of you who don’t know, MD Anderson is a leader in leukemia treatment and research. It is also one of the largest cancer centers in the United States. I count my blessings that I have the opportunity to get a second opinion here. A BIG thank you goes out to Jackie and Cary for making this possible. I guess to put in the most simple terms, I can’t express my appreciation enough.

After lots of convicing, we are here. I had a first by flying on a private plane today – and let me tell you – that’s the way to fly. (I am sure I don’t need to convince any of you out there.) There was no waiting in security lines, no dealing with tiresome TSA agents or and no waiting for our plane to leave. We walked out onto the tarmacc, the pilots loaded our luggage onto the plane and we took our seats. It took an exact 3 hours from Las Vegas to Houston. Talk about easy!

Texas is two hours ahead of Las Vegas, so it was pretty much bedtime by the time we got to the hotel. Of course I can’t sleep because I anticipate a big day tomorrow. I have been fortunate enough to get an appointment with a top oncologist, Dr. Cortes (who I am told is a well-respected and well-known doctor in the leukemia and cancer field.)

I know tomorrow will be a long and tiresome day. It will be filled with meeting Dr. Cortes, blood work, another bone marrow biopsy (not looking forward to that), x-rays and CT scans. We hope to be done by 5 in the evening. Maybe when we are done, it will give us an opportunity to explore Houston. Neither Jackie nor I have been to Texas before, so it should be quite the treat. However, we did leave our cowboy hats and cowboy boots at home. I hope that wasn’t a mistake. It is rainy here and should be for the next 3 days – which is how long MD Anderson has prepared us to stay. We are typical Las Vegas girls – we think its too cold here. I do welcome the stormy, cooler weather because we rarely get that in Las Vegas.

The good news is that I have a whole big bed all to myself. Its a far cry from my hospital bed. (I was just released from Camp Summerlin this morning.) I am enjoying a lovely down comforter and lots of fluffy pillows. I plan on sleeping right smack dab in the niddle of the bed. I also don’t have to share the bed with dogs and kids. I am not sure what to do with myself.  Hopwfully it should assure me a good night’s rest….I just hope I can get to sleep.

Four Seasons Bed

Here’s another first…each bathroom in our hotel rooms have a bidet (pronounced ba-day.) I believe bidets are typically found in a) very nice houses or b) in Europe or Latin America….or I guess nice hotels (as proven today.) This raises the question…how does a bidet actually work? I kept looking at it, trying to figure it out. It seems complicated. I almost feel like I should try it out just for s$@&’s and giggles. But for some reason, I think its designed more for men than women. I guess you learn something new every day… it was something fun to Google. If you’re interested, here’s how to use one. I hope you find the information handy one day. You never know when the information can become useful.

Bidet

Wish me luck tomorrow. I am excited to go. I am anxious to see what they have to say and dreading the bone marrow biopsy. I have been told by my friend (and walking partner Ilene) that MD Anderson is large, beautiful and somewhat overwhelming. I can’t wait to take some pictures and enjoy my time here. I will try and keep this updated throughout my stay. I am sure I’ll learn a lot!